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Stories that you confided to us

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Valentyna Mykolaiva

"Right after we moved, everything was in black: dreams, thoughts, drawings"

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We left our native Horlivka literally under fire. This was extremely necessary, because granddaughter Nastya has already been suffering from epilepsy for several years and needs to take special medications every day.

 After the stress experienced at home, my sister Vika also started having convulsionary attacks. They are twins, after all. Although they are completely different in many ways. They spend all their time together, and it's probably easier for them to experience everything that happens.

 The girls really love to draw. This is how they learn about the world around them. They also do hand motility tasks, and share their emotions and experiences with each other.

 At the age of three, Nastya was diagnosed with epilepsy. She had periodical breath catches, She has had to take daily medications ever since. Anya, the girls' mother and my daughter, starts her day by ordering all the pills Nastya needs to drink during the day.

 We follow a strict regime and special control directions over the psychological state of the child. We are undergoing regular check-ups, but no fundamental improvements have been made yet. However, we are able to maintain her stable condition and control breath catches thanks to the medicines that the Akhmetov Humanitarian Center provided us with.

 At the end of the summer, we moved to Kharkiv. First we lived with friends, and later we moved to a 15 sqm studio apartment on the outskirts. We spend all our money on rental housing. Anya is an infectious diseases specialist, but she is currently employed as a salesman. There is no other way for us to survive.

 Everything seemed to be getting better, but Vika also started having convulsionary attacks. Doctors explained this to be the result of genetic predisposition and stress experienced at home. But, fortunately, the disease Vika is suffering from is not so acute as Nastya's, and complications can be avoided by taking a course of "light" medications.

Six months later, living in a calm atmosphere, the girls began to recover from stress. Right after moving in, we saw everything in black: dreams, thoughts, drawings. Now the children began to feel better. And recently Nastya has shared that she dreams that the war is over.

When quoting a story, a reference to the source – the Museum of Civilian Voices of the Rinat Akhmetov Foundation – is mandatory, as follows:

The Museum of Civilian Voices of the Rinat Akhmetov Foundation https://civilvoicesmuseum.org/

Rinat Akhmetov Foundation Civilian Voices Museum
Gorlovka 2014 Text Civilian's stories
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